Active Life with Multiple Sclerosis – MS
Blog about my attempt at living an active and fulfilling life with multiple sclerosis
My Story: From Invincible toward Chronically Ill
Starting MS Journey
First encounters with the multiple sclerosis symptoms.
The Invincible Me.
I have MS! What does that even mean?
OK. I will fight you, MS!
Creating a Plan
Exercise
Diet
Medication
Family
Friends
Doctors
About Me
✓ Read More about my R&D
✓ What is known of MS and Immunity
Latest Posts
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Maximizing the ODDs to stay healthy
Key Focus Areas
01
Medication
I am lucky that MS drugs available today are a lot more effective than those even just 10 years ago. I believe everyone with MS should be on disease-modifying therapies -DMTs. There will be a section in my blog specifically focused on new developments and novel drugs available. I will also dedicate some time to struggles with health coverage and accessibility to the best drugs as well as alternatives.
02
Exercise
It is generally accepted that exercise improves the course of MS relapses and has a beneficial impact on the general health of people with (or without) MS. This section will focus not only on physical exercise but also on mental health. I will try to capture my attempts at staying mentally fit, too. I will focus on my exercise plans and progress in my blog.
03
Diet
There are several reports that diet has an impact on people struggling with MS. There are even reports that diet can cure MS and stop relapses. I am skeptical about these reports, but I know that diet has an impact on the immune system and an autoimmune reaction causes MS. I will be controlling my diet and making any adjustments necessary to keep MS at bay. I am planning to post articles focused on food and various dietary supplements.
Have Questions?
Frequently Asked
Questions
What is MS?
Multiple sclerosis (MS) is an autoimmune disease that damages sheets covering our nerves and leads to various disruptions of our body functions. MS is feared as an incurable disease that often leads to disability. There are many misleading assumptions about the disease in public, most likely stemming from the variability of symptoms between different patients. This is caused by the randomness of where and how the immune system attacks the nerve sheets, which is unique to every patient.
What causes MS?
MS is caused by an attack of our immune system on nerves, causing various symptoms. It was found recently that the Epstein-Barr virus that also causes Mono is associated with developing MS. The EBV attacks B-lymphocytes of the immune system and, in some cases, causes irreversible changes leading to MS. However, it is unclear why roughly only ~0.3% of the population has MS when over 95% of the population gets infected by EBV at some point in their lives.
Is MS a genetic disease?
There is a genetic component only to some extent, but environmental factors also play a role. For example, if one of identical twins gets MS, there is a 25% chance that the other twin also gets it. If MS were purely a genetic disease, the chance would have been 100%. When it comes to siblings, the chances that another sibling gets MS after one sibling gets the disease are only slightly higher. There are reports that there is a higher prevalence of MS farther from the equator, linking it with sun and vitamin D deficiency. Incomplete data and lack of proper diagnostics in some areas likely skew the earlier statistics.
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